“Where Did You Take Your Urine?”

I’ve been getting diagnostic testing done to determine whether I have an autoimmune or autoinflammatory disorder. So far, some abnormal test results, but no diagnosis.

I had a follow-up appointment with a specialist today.  [I was hoping for a diagnosis.]  We were supposed to go over the test results. However, not all of the results have been returned to the specialist. The 24-hr urine collection sample had to be sent to the Mayo Clinic because they have the only lab in the US that can do some of the tests I needed.  And the results are M.I.A.

My doctor left the exam room, and returned with her nurse, saying, “This is my awesome nurse, [NAME].” I said, “Hello, awesome nurse [NAME]!” The nurse smiled, and responded, “Where did you take your urine?”

And even though I understood she meant, “Where did you deliver your urine sample, so we can start tracing it and hopefully get the test results?,” I couldn’t help but pause before responding, because what I was thinking was, “Now there’s a sentence I’ll bet you never thought you’d say before you became a nurse!”

And I also had to resist the urge to respond sarcastically with a list of all the cool places I had taken my urine: amusement park, carnival, swimming pool…

Once my inner dialogue had run its course, I responded with the name of the lab near my home to which I had delivered my specimen, so that they could ship it to the Mayo Clinic.

Hopefully we will be able to track down my test results.  I would prefer not to do the 24-hr collection again.

In the meantime, here’s hoping no one asks you: “Where did you take your urine?”

Breaking My New Year’s Resolution: There WILL be surgery in 2017

The plane in this photo is ground looping.  A ground loop can happen when a plane rotates horizontally (slides) while on the ground.  Ground loops can damage the landing gear, underside, and wings of an aircraft.  If a wingtip digs into the ground, the plane can even cartwheel.

Having ground looped my body three years ago by slipping on a wet tile floor and catching a wing (left arm) violently, I find that I am still not fully repaired.

I had hoped that the elbow surgery would be the last required repair.  However, we did not see the results we had hoped for.  The elbow surgery was a success, but I still had symptoms.  Distressingly, the shoulder (which was the first item repaired) was clunking again, and beginning to hurt.  It no longer functioned normally.

After failing physical therapy again, and undergoing an arthroscopy and MRI for said shoulder again, I learned that the first surgery (in the words of my current orthopedic surgeon) had “failed.”  The labrum showed a recurrent tear.

My surgeon informed me that he would not have performed the first repair in the manner in which my previous surgeon did, because I was “too old” for the surgery to be successful.  I might have thought about being offended at the age remark, but my surgeon is just a year or two younger than I am.  However, I was a bit irked that my first surgeon apparently wasn’t as current in the research as my second surgeon.

I was informed that labral repairs were previously thought to heal successfully in patients in their forties, but that more recent research shows the labrum doesn’t heal very well in patients much above 30.  For example, “A systematic review of surgery for SLAP tears included several studies that reported higher failure and complication rates in patients over age 40.”]

Because, of course, that couldn’t be enough, the MRI also showed that one of the tendons that comprise my rotator cuff is now torn also, as is one of my glenohumeral ligaments.

“See Doc, I told you it was broke!”

So now I’m headed for my fourth surgery to repair the damage done when I slipped and fell on that blasted wet floor.  Shoulder, wrist, elbow, and now, shoulder again.

It remains to be seen whether the rotator cuff tendon is torn enough to warrant repair, or whether it can be left alone to heal by itself.  If the surgeon needs to repair the rotator cuff while he’s in there, the recovery will be much longer and more painful.  [If the rotator cuff needs surgical repair, my projected recovery time doubles.]  So I’m hoping the rotator cuff damage isn’t too bad, and he can leave it alone.  The surgeon will probably leave the glenohumeral damage alone too.

It’s disillusioning when you discover that some damage just isn’t worth repairing – you’ll either heal or you won’t.

I know this sounds like maybe my current surgeon just doesn’t want to exert himself, and maybe I should be concerned for my welfare.  But I can reassure you (and myself) that this surgeon is one of the best.  I heavily vetted him before I let him operate on my wrist, and that surgery was phenomenally successful.  He also performed my elbow surgery, which had a successful outcome as well.

*Because* of our previous history, I am willing to trust him with my shoulder, even though what he is recommending sounds a bit counter-intuitive to me.  Even so, I am heavily researching his proposed surgical plan.  He knows that I do extensive research, and has suggested several relevant medical articles for me to review.

I am also aware that many orthopedic surgeons specialize in one area (knee, wrist, hip, shoulder, etc.).  Just because he is one of the best hand surgeons does not necessarily mean that he is a good shoulder surgeon as well.  He and I have discussed this, and I asked him how frequently he does shoulder surgeries, and what his success rate is.  I was satisfied with his answers, and I believe he will do as well with my shoulder as he has with my wrist and elbow.

So, I’m scheduled for shoulder surgery in about two weeks.

I’m really not looking forward to not being able to drive.  Or trying to wash myself with only one hand.  Not being able to open jars (and many other things).  Wearing pull-on pants, because I can’t fasten buttons.  Wearing slip-on shoes, because I can’t tie shoelaces.  Don’t EVEN get me started on how impossible it is to open the safety cap on prescription medicines with only one hand!  (Shouldn’t the pharmacy get notification that the prescription is for a patient who won’t be able to open the medicines if they flip the lid to “Safety”?)

But every time I go through this, it reminds me that my injuries could be worse.  That my disabilities could be worse.  I think a lot about wounded warriors when I am doing my rehabilitation.  My struggles will hopefully only be temporary.  Many wounded warriors live with their disabilities for the rest of their lives.

So many of the things we take for granted are a struggle for those who are incapacitated.  Health and able-bodiedness are the ultimate privilege.

Bottom Line:  I am scheduled for another surgery to repair my damaged arm.  My New Year’s Resolution of “No Surgeries in 2017” will be broken.  This will be my fourth surgery on this arm, and my second surgery on this shoulder.  I don’t know how many procedures the surgeon will need to perform during the surgery – I’m hoping only one.  I welcome whatever good will you’re inclined to send my way – hopefully the universe is listening.

I’m ready for the repairs to be complete and to be “airworthy” again.  I’m tired of living with the lingering damage from this ground looping incident.

WARNING: BEWARE SLIP AND FALL INJURIES!

Standing By to Stand By (And What It’s Like to Do a Spirometry Test)

I saw the specialist at a leading institution last week.  (Not the doctor in the picture, who is a random allergist/immunologist.)  It went about as well as can be expected.  But I don’t have any answers yet.

The specialist sent me for more testing.  More blood samples.  More urine samples.  (This will be my third 24-hr urine collection.)  Some tests are repeats (for verification).  Others are new.  One of the blood sample vials went directly into a bag filled with ice, since the component being examined is highly heat-sensitive.  First time I’ve seen that.

While I was at the leading institution, I also had a spirometry test.  This test measures how well your lungs are working.  It measures how much air you inhale and exhale, and how quickly you exhale.

I didn’t quite grasp how the test was supposed to work at first.  The assistant handed me a nose pincer that looked like two ear plugs on the ends of a clamp.

These are used to keep any air from escaping through your nose.

Then the assistant handed me the hose (with attached mouthpiece).

(I did not get to look at the display as the person in this image is doing.)

I was told to put the nose pincers on my nose, get a good seal on the mouthpiece, and exhale for 6 seconds.  This is the part that I did not understand.

I thought that if I needed to exhale for 6 seconds, I needed to pace myself. So I was gradually exhaling.  Apparently this is incorrect, because the test also measures how quickly you exhale, and I was told to exhale as hard as I could.

The assistant guided me through breathing “normally” through the mouthpiece for several cycles, then told me to take a deep breath, exhale hard, and keep exhaling until I was told to stop.

After a forceful exhalation, I didn’t feel like I had enough air left in my lungs to keep exhaling for 6 seconds, which is what I told the assistant.

I was told to keep a good seal with the mouthpiece and keep exhaling until told to stop, regardless of whether I felt anything was coming out.

We needed 3 good cycles of measurement.

On the first cycle, I exhaled hard and exhaled some phlegm.  I tried to keep exhaling without sliming their machine.  This may have compromised my performance.  (Didn’t mention this to the assistant.)  (Mouthpieces are sanitary, and are swapped out between patients, in case you were wondering.)

On the second and third cycles, I exhaled hard, and then felt like I ran out of air quickly.  I gave my best effort at exhaling for the entire 6 seconds, as the assistant was shouting, “Keep exhaling!  Keep exhaling!”  But I felt like no air was coming out.

Also, the nose pincers were sliding around on my nose, and I was concerned they would slide off, which was distracting.

Overall, the test was not difficult, nor was it painful or uncomfortable in any way.  You just sit in a chair and blow into a tube.  It is not difficult to inhale or exhale through the device.  It does not constrict your breathing.

But I thought I had failed the test.  I thought I should have been able to exhale noticeably the entire time.

Imagine my surprise when I was told that my “expiration” was better than normal!

This means that I probably do not have asthma, COPD, or other breathing conditions.  (I was not expecting to have any of these conditions, although it could have been possible to have allergy-related asthma.)

So today I am doing the 24-hr urine collection, and waiting.

I have a follow-up with the “expert” specialist in 8 weeks.

The specialist also gave me a prescription for another medicine to add to the ones I’m already taking.  If Tricare will approve the prescription, I can see how that works, and report back to the specialist at the follow-up appointment.

Bottom line: Saw the specialist.  Was told my hypothesis was worth exploring.  Was also told my symptoms are very difficult to diagnose, and we may never reach a diagnosis.  But the specialist is interested in helping me improve my quality of life.  The tests that were ordered make sense for an exploration of my hypothesis, and so does the new prescription.  The specialist was knowledgeable and empathetic.

So I am currently standing by to stand by.

Medical Procedures: Trigger Finger (Steroid Injection) Update

Update: I developed trigger finger in the same pinky finger approximately 10-11 weeks after elbow surgery (approximately 8 months after the first steroid injection), when the post-surgery therapeutic exercises began to put more strain on my finger.  I mentioned to my occupational therapist (OT) that my pinky finger was swollen and stiff, and that the joint near the top of my palm (the metacarpophalangeal joint) was very tender, sore, and warm to the touch.

My OT remembered that that was the same finger in which I had previously had trigger finger, and made an appointment for me with my orthopedic surgeon to get another steroid injection.  My ortho injected the joint approximately 12 weeks post-surgery, and said that if trigger finger comes back a third time, he would consider a surgical treatment.

Hopefully this will not be necessary, as my third New Year’s Resolution, which I did not share with you, is “No Surgeries in 2017!”

Ending 2016 with More Surgery

I am headed for surgery on December 14th (Wednesday).  This time for the elbow.  We’re not sure what’s wrong with it, exactly.  The symptoms are obvious, but the exact diagnosis is not. [At least, to me.  My surgeon might disagree, but then perhaps he should explain things better.]

The elbow hurts (all the time), and does not want to fully extend.  It would catch before the arm reached full extension and wouldn’t go any further.  Sometimes I could eventually get the arm to fully extend after multiple attempts.  The doctor gave me a steroid injection in the elbow joint, and now I can fully extend my arm (very slowly, and I have to wait for it to clunk into place).  None of the other symptoms were cured by the injection.

There is also a great deal of crunching and popping when I extend my arm.  The confusion lies in the fact that my elbow area snaps upon extension.  My surgeon thinks that I may have a snapping triceps, but that is supposed to happen upon flexion, although this journal article says it could happen in either direction.

Elbow 101: This website explains the basics of elbow anatomy and function.

My hand is also still swollen, with some numbness and lack of strength.  February will be three years since the original injury.  My hand has been swollen for nearly three years.  It is also discolored – compared to my healthy hand, it looks bluish-purple and darker.  The forearm does also.

The MRI resulted in a diagnosis of “tennis elbow” (lateral epicondylitis).

The EMG/CNS was inconclusive.  Based on my symptoms and physical examination, the surgeon is planning to do two or three procedures: 1) percutaneous tennis elbow release; 2) transposition of the ulnar nerve; and possibly 3) correct the snapping tendon if it is, in fact, snapping.

Here are explanations of the three procedures:

Explanation of percutaneous release from Cochrane.org:

Surgery on your elbow can include making a small cut in the arm and trimming damaged tissue from the tendon that joins the extensor carpi radialis brevis (ECRB) to the bone in the elbow (called an ECRB tenotomy), or releasing the tendon from the bone with a scalpel (called an ECRB release). The tenotomy may be done ‘percutaneously’, with a much smaller (1 cm) incision in the skin, or arthroscopically from within the joint.

Transposition of the ulnar nerve (Hughston Clinic Orthopaedics):

The procedure is performed under general anesthesia or with regional anesthetic. The ulnar nerve area is located and cleaned with an antiseptic solution.  A small incision is made around the medial epicondyle and the surgeon will locate the ulnar nerve.

This nerve is then moved out of its location under the medial epicondyle and placed in a more superficial area on the front the medial epicondyle. This new position may be directly under the skin or may be within a muscle. This process of moving the ulnar nerve out of the groove under the medial epicondyle into the front of the epicondyle is called anterior transposition.

Transposition of the ulnar nerve remedies ulnar nerve entrapment.  There is another good discussion of ulnar nerve entrapment here.

This video includes a discussion of ulnar nerve transposition, as well as actual footage of the surgical procedure.  I don’t think it’s very gory, but if you’re squeamish, you may want to only watch the first part of the video.

The next video shows some footage from a snapping triceps surgery.  I think it is a bit gorier than the previous video, so you may not want to watch it if you don’t like the sight of blood and the inside of human beings.  However, I think seeing the internal mechanisms in motion is fascinating.

This surgery will be my third on this arm: shoulder, elbow, and wrist will all have been repaired.  At this point, I’m wondering if I should have opted for a bionic arm, or perhaps a robot arm like Luke Skywalker’s.  Again, I reiterate the hazards of slip and fall injuries!

Bottom Line: I will be NMC (not mission capable) through the end of the year.  I’ll let you know in 2017 how the elbow surgery went, and what the surgeon found when he looked inside.  

Here’s hoping 2017 is a year of increasingly better health for everyone.

Guest Post: What It’s Like To Try Acupuncture And Cupping

This week we have a special treat – a guest post from Doug Nordman a.k.a Nords, from The Military Guide.  He’s sharing with us his experiences with medical tourism.  He bravely (or foolishly?) underwent acupuncture, cupping, and moxibustion in Thailand.

Remember the Olympic swimmers and their purple dots this past summer?  That’s what you look like after cupping.  To learn more about these procedures, and medical treatment abroad, read on:

Thanks for inviting me to write about these treatments, Crew Dog!

I’m a 56-year-old retired U.S. Navy submariner. As a “recovering nuke,” I’m skeptical about alternative medicine. Before I believe in a medical technique I want to read a pile of peer-reviewed reproducible studies of double-blind experiments with statistically significant evidence– and acupuncture just isn’t there yet. If acupuncture achieves anything at all, it might be simply a gigantic placebo effect.

However I’ve lived in Hawaii for over 25 years, where Occidental and Oriental cultures overlap with science and technology. I’ve learned to keep an open mind when I encounter treatments which defy the explanations of medical research.

My physical therapy for joint injuries has taught me that Western medical science doesn’t always have a precise explanation for why a technique works. I’ll enjoy the results whether or not I fully understand the mechanisms. If acupuncture is simply just a gigantic placebo effect then I can live with that.

I’m also willing to try new approaches because I’m a little frustrated with my aging body. I’m encountering new limits in my maximum heart rate and recovery time. When I was in my 40s, I used to burn through the Navy’s physical fitness test and then go work out. These days, after that type of exercise I’m tempted to burn through 800 mg of Ibuprofen and take a nap. When I do a couple hours of heavy yard work, I have to be careful to maintain good posture in my knees and my back – I don’t want to end up in another round of physical therapy.

My body’s latest betrayal is my left shoulder (deltoid) muscle. Over 10 months ago I felt a small “pop” during a push-up set, and the next day I couldn’t raise my left arm above my shoulder. It slowly healed over the next six months but I kept re-injuring it. When we traveled to Bangkok, I still didn’t have full range of motion and I couldn’t put my left hand up behind my back. I was worried that I’d injured my rotator cuff and I felt like an idiot.

Thailand’s cost of living is incredibly cheap, and Bangkok’s major hospitals are a magnet for medical tourism. My spouse and I had heard about the Traditional Chinese Medicine Clinic of Hua Chiew Hospital, and we were happy to spend a few dollars to experiment on my deltoids.

Hua Chiew is definitely not practicing traditional Western medicine: the hospital takes walk-in patients. The lobby was a beehive of activity with a large waiting area by the cashier’s window. The clerk at the front desk explained (in English) that a typical acupuncture treatment would be less than 600 baht. (At 35 baht per dollar, that’s just over $17– and nobody asked us about insurance.) He entered our names into their computer system. We stopped by the next table for a quick health check of height, weight, temperature, and blood pressure before being sent up to room 504.

The fifth floor was quieter, with a few patients in the hallway and a family in the waiting area. When I walked into room 501’s open ward, it smelled like old cigarette smoke– and marijuana. (Hey, I have a training certificate from a 1980s Navy drug education class with a “test burn”.) I was greeted by an acupuncturist and an assistant who asked me where it hurt. A few minutes later the assistant was guiding me to an exam table.

“This won’t hurt a bit.”

I was asked to remove my t-shirt (which the assistant quickly hung on a hanger) and arranged on my right side with my left arm extended across a pile of pillows. While the assistant set up the privacy curtains, the acupuncturist came up behind me with a tray of needles and other tools. (Selfies were discouraged during this procedure, but I took photos afterward.) I turned my head to watch, but she politely asked me to relax on my pillow so that she could put needles into my neck.

She swabbed my skin with antiseptic and opened a package. Each needle was about three inches long with tiny coils at their gripping end, and they seemed very delicate. They must have been extremely fine and sharp because I could barely feel them going in– just a cool sliding sensation as she inserted them about an inch. My skin didn’t even dimple as she gently and quickly placed them from neck to elbow. A minute later I had a dozen needles sticking out, and she suggested that I should stay still. She even put two needles in the side of my left calf, explaining that there’s a nerve connection to the shoulder.

Then the assistant brought out a power supply and an electronics box. I later learned that this was an electrical muscle stimulation system, and the acupuncture needles make it easy to deliver the electrons directly to the injured area. She wrapped electrical wires around two of the needle coils and flipped a switch. My deltoid promptly started twitching gently, about once per second. After she checked the electronics display, she brought out an IR heat lamp and positioned that over my left shoulder. She said she’d check on me in 30 minutes and gave me a call button to push if I had any problems.

I stayed as still as I could despite being a human pincushion with my shoulder twitching like a frog leg in Dr. Frankenstein’s high-school biology class, while the lamp heated my shoulder (and the metal needles). It must have looked extremely uncomfortable.

A few minutes later I dozed off.

Judging from the assistant’s polite smile when she woke me up, this must happen a lot.

Well, technically my deltoid kept twitching while the rest of me had a very nice nap. When she turned off the machine, my entire shoulder relaxed.

She gently extracted all the needles that they’d inserted. (I kept count just to make sure.) I could barely feel the sliding sensation as they were removed, but there was no pain.

Then she picked up a tray of heavy glass cups, and I realized that I’d signed up for a bonus cupping session after the acupuncture.

Cupping

The assistant laid out a dozen cups of various sizes. They were each about 2”-3” tall and 1”-2” in diameter, made out of heavy glass. She rubbed a light coat of oil over my shoulder and back (to get a better seal).

Next she used her forceps to pick up a cotton ball and dip it in a liquid that looked like alcohol. Then she picked up a cigarette lighter, set the cotton ball on fire, and walked over to my shoulder.

An open flame. In a hospital. In a ward where there were probably oxygen canisters near more flammable liquids and oily skin. With a submariner who used to teach firefighting tactics at a training command.

I was not happy.

It turned out that the flaming cotton ball heated up the cups (and the air inside them). The acupuncturist briefly warmed each cup over the flame and then gently slapped them down on the skin that had held needles. As the air in the cups cooled and contracted, the suction drew the skin up into the cups and held them in place. A few cups were pried off and re-applied for a better seal.

As the skin on my shoulder and back was pulled up into the cups, I could feel a warm tingling as more blood was pulled up into my muscles. Several minutes later the assistant released all of the cups (with a wood tongue depressor) and wiped the oil off my skin.

The acupuncturist asked me to sit up and move my arm around. It was still warm from the treatment, and the deltoid felt particularly loose. I was happy to discover that I had much more flexibility and no pain. Wonderful!

When I checked my shoulder and back in a mirror, it looked like I’d lost a grappling match with an octopus. (This picture was taken an hour later.) The acupuncturist reassured me that the bruising would fade in a few days. In my case, the marks took nearly three weeks to disappear.

after-cupping

What happened to make my arm feel so much better?

According to traditional Chinese medicine, my body’s qi had been manipulated by the needles and the cups to bring more healing energy to my damaged deltoid.

Western medicine claims that my muscles had been stimulated by electricity, bringing more blood and lymph fluid to help repair the microtears. The heat and the cupping had brought even more blood into the muscle and skin, causing more bruising yet supplying more healing fluids. My body would focus greater effort on repairing damage in that area, which would also accelerate repairs to the deltoid muscle.

And, of course, the hour’s performance had kicked my placebo effect (and endorphins) into overdrive. No wonder I felt so good.

I’ll leave that debate to the doctors. Whatever happened during that hour, the pain relief (and the greater range of motion) was worth every penny of $17.

When I paid the bill at the cashier’s desk in the lobby, it was more like $16.75. My smartphone’s Google Translate software wasn’t much help here, but if you read Chinese or Thai then please feel free to share the details.

hua-chiew-invoice-and-patient-card

Followup

As I left the fifth floor, I was handed a small appointment card and admonished to return in three days for more treatment. My spouse and I got busy with other activities (there’s a lot to see & do in Bangkok) and we returned in nine days. When we walked in (still no appointment necessary!), the front desk checked our cards and started the routine again.

When I walked back into room 501 it still smelled like marijuana. I confidently returned to my treatment table, hung up my t-shirt, and laid down for an encore of my last visit. The setup went the same and I was soon bristling with acupuncture needles, but they didn’t haul out the electrical box.

This time the assistant unwrapped a couple small paper packages the size of a section of a Tootsie Roll. Later I learned that they held a dried Chinese herb called moxa, and I was about to experience moxibustion.

She poked two of the herb bundles on top of two of the acupuncture needles… and then lit them with her cigarette lighter. I immediately realized why the ward smelled like marijuana smoke, only it was burning moxa.

moxibustion

As she pulled the privacy curtains closed, she asked me to push the call button if my deltoid got too warm. I soon realized that moxa burns just like tobacco and it was heating up the acupuncture needles. Those, in turn, conducted the heat straight down to my deltoid muscle. I wasn’t exactly getting first-degree burns, but it was uncomfortably warm under my skin. I gritted my teeth and vowed to wait out the moxa.

It must have worked because I dozed off again. The moxa stopped smoldering in 20 minutes and the assistant followed up with the heat lamp for another 10 minutes. They removed the acupuncture needles and commented that my cupping bruises were sure taking a long time to heal, but that was the end of the session!

This time I only paid 525 baht ($15).

Long-term results

We’ve been back on Oahu for a couple of weeks, and my left deltoid is completely healed. It could be qi or it could be targeted electricity and heat therapy, but the results are undeniable. I’m back to pull-ups and push-ups and reaching up between my shoulder blades. I’m also doing more stretching and taking it a little easier with the multiple sets, but now I know what a local acupuncture clinic (or the placebo effect) can do for me.

Either way, I’m happy.

Crew Dog: Doug usually writes about Financial Independence and Early Retirement, and how he did it on a military salary, at the-military-guide.com.  He’s also the author of The Military Guide To Financial Independence And Retirement.

Have you been a medical tourist, or tried alternative medical procedures? What were your experiences like?  Comment below.

Medical Procedures: What It’s Like to Have an MRI (with contrast)

The first MRI (magnetic resonance imaging) I ever had was a cerebral MRI in a foreign country.  I hadn’t been in the country very long, and didn’t speak much of the language.  I also didn’t know much about the procedure.  All I knew is these people with whom I could barely communicate were going to look inside my head.

The MRI was state-of-the-art – a small, donut-shaped open MRI machine:

The nurse, however, was another story.  She had no bedside manner, or rather, her bedside manner was very stern and unyielding.

My referring physician had requested an MRI with contrast, which means “dye” was injected into my veins through an IV.  The dye helps the radiologist see certain areas more clearly.

After the nurse inserted the IV and began administering the contrast, I felt a burning sensation in the arm in which she had placed the IV.  I was concerned that I might be having an allergic reaction to the dye, because I had read that was possible.  I asked the nurse if the burning sensation was normal (I rather doubted that it was).  Once she understood my question (it took several attempts, due to the language barrier), her response was “That is not possible.”

It has been over 15 years since this experience, and I still remember it vividly.  I am in a hospital gown in a cold room in a foreign country, and I am having what seems to me to be an abnormal response to this medical procedure, and all the nurse will say is “That is not possible.”  I asked again.  Again she responded “That is not possible.”  I started to get excited:  “It must be possible, because it is currently happening TO ME!”  

I could not believe that I might die of a routine medical procedure because the nurse refused to acknowledge my reality.  I had driven myself to the procedure, and I wondered how long it would take before anyone figured out what had happened to me.

I continued to express to the nurse that I thought I might have a problem and I was not satisfied with her answer.  Finally she snapped, “The only way that would be possible is if I had missed the vein, and I did not miss the vein!”  Case closed, as far as she was concerned.

I finally decided I would either die or I wouldn’t, but I didn’t seem to have any control over the outcome.  So I made my peace with it, and continued on with the procedure.

I was given ear plugs, because the machine can be loud.  After I inserted the ear plugs, I laid back on the patient table, someone tucked a foam wedge under my knees for comfort and placed a thin blanket over me for warmth, fastened a basket-type device around my head (see image at beginning of post), and I was eased into the MRI “donut.”

I don’t remember much from that first MRI, except that it didn’t seem that bad, and it was over fairly quickly.

I didn’t die from an allergic reaction to the dye, obviously.  But I was correct that the burning sensation was not normal.  Miss “That is not possible” was wrong.  As it turned out, she had not missed the vein – she had gone completely through it.  I figured this out the next day, when I woke up with a huge black & green bruise on the inside of my elbow, surrounding the IV site.

Presumably enough dye reached my brain for the radiologist to get adequate images, since my doctor was given results, and I didn’t have to re-do the procedure.

Since then, I have had several more MRIs – a few more looking at my brain, and ones looking at my hand/wrist, elbow, and shoulder.

Here’s what I’ve learned about MRIs:

There is a wide variety of condition of equipment and pleasantness of experience.  The “donut” open MRI was the nicest equipment I have experienced.  Many facilities do not have them, or only use them for certain patients (obese, claustrophobic, etc.).

The nicest facilities now have headsets for the patients to wear during the procedure, and will play your choice of local radio stations or even subscription radio (Sirius XM, etc.).  Time passes more quickly when you are listening to your favorite jam.

The worst experience I have had was at a military facility.  The MRI was in a trailer in the parking lot – it was on loan from the VA.  Yes, I had to walk across the parking lot in my hospital gown to get to the trailer.  The machine was small, so the table that I laid on was narrow, and the machine opening was tight too.  That’s the closest I’ve come to feeling claustrophobic in an MRI machine.  The machine was old and VERY LOUD.  There was no music.  No headsets.  Only ear plugs and disappointment.  And a lot of vibration.

The MRI machine cycles through various “runs.”  In most facilities, the technician will talk you through the procedure while it is happening, informing you when the next run is starting, and how long it will last.

You have two-way communication with the technician at all times.  You also have a “panic button” in your hand that you can press at any time if you want to disrupt the procedure and get immediate assistance.

The machine makes noises at different frequencies and volumes during the different runs.  Some runs are quieter and less noticeable.  Other runs are loud, and you can feel the vibration in your body.  Some feel like thuds.  It doesn’t hurt, but some runs are louder and less pleasant than others.

The contrast agent (“dye”) does not normally burn.  You usually can’t feel it at all.  Sometimes it might feel a little cold initially.  Sometimes you might get an odd taste in your mouth (kind-of metallic).  Side effects are rare, but can happen.

In my opinion, cerebral MRIs are the easiest, because all you have to do is lie on your back and not fall asleep.  (Some people might not agree, as a cerebral MRI guarantees that your head must be inside the machine, whereas if they are imaging your arm or leg your head might not have to be inside the MRI machine.

NOTE: It is very important that you not move while the MRI is being conducted.  Moving can blur the images, and the procedure, or portions of the procedure would then need to be repeated to get clear, accurate images.  This is also the reason that the body part to be imaged is typically placed in a surrounding device to help stabilize it.  This is also the reason you cannot fall asleep, as you might move in your sleep.

For me, the MRI of my shoulder was no big deal.  The wrist and elbow were more memorable.

In order to get the images they needed of my elbow and wrist, I was required to lie in less comfortable positions.  Although the techs propped me on various pillows and foam wedges to hold my body in the position they needed, my muscles started to fatigue during both of these MRIs.  I was trying to prevent my wrist and arm from shaking, but the muscles became so fatigued that I was unable to prevent the muscle trembles by the end of the procedures.

In particular, for the elbow MRI, I was positioned with the injured arm straight out above my head, in front of me, like Superman’s flying position.  For this procedure, I laid on my belly, rather than my back.  Despite my best efforts, I could not keep my arm from shaking by the end of that procedure, although the tech said the images came out ok.

The procedure typically takes about 45 minutes.  Afterward, the tech will typically check the images to see if any runs need to be redone.

Bottom line:  MRIs are loud, but the procedure isn’t a bad experience.  They are not painful.  I have never felt claustrophobic, although I came close in the tiny, old military MRI machine.  If you are claustrophobic, make sure you are referred to a facility that has an open MRI machine and has experience with claustrophobic patients.  Also, you can get a mild sedative if you need one to help you get through the procedure.

[If you think you will need a sedative, make sure you bring a wingman/battle buddy to drive you home.]

It is very rare to have an allergic reaction to the contrast agent.  The pre-procedure paperwork will explain the type of agent used and possible side effects.  If you have any concerns, discuss them with your referring physician or with the MRI facility staff.

You can resume your regular activities upon completion of the MRI – it’s not a procedure that requires recovery time afterward.

Don’t worry that you will get a nurse like I had for my first MRI – “That is not possible.” 🙂  Every tech I have had in the US has been very helpful, very knowledgeable, and most of them have been very reassuring.  They know the procedure can be a bit intimidating for many people, and they typically go out of their way to make it as pleasant as possible for you.

Not Mission Capable: Why I Have No Post This Week

I wish I could tell you there is no post this week because I have been hiking in the Rockies and enjoying the flare of golden aspens before winter comes.  Or because I have been scuba diving in the South Pacific.  Or because I have been traveling the world sampling exotic cuisines and learning about diverse cultures.

However, the reality is I am just sick and tired this week and feel too crappy to write a post.

The reality is that I don’t have the energy to leave the house, and I’m currently on a very restrictive diet that my allergist has assigned to help us determine my food allergies.

A friend, and fellow vet, sent me this video clip illustrating how crappy 2016 has been and it got me thinking…

So far, this year, I have seen the following medical specialists:

  • several PCMs
  • an orthopedic surgeon
  • several anesthesiologists & a CNA
  • an occupational therapist
  • a physical therapist
  • a neurologist
  • an allergist
  • a dermatologist
  • several radiologists
  • an optometrist
  • the NP who administers Botox shots
  • a PA in the VA wrist clinic
  • and various medical assistants (LPNs etc.)

I have had numerous diagnostic medical procedures:

  • an EMG/CNS
  • 2 MRI/arthrograms (elbow & wrist)
  • 1 cerebral MRI
  • numerous x-rays (elbow & wrist)
  • a cardiac ultrasound (echocardiogram)
  • 2 allergy skin tests (skin prick and injection)
  • numerous blood draws
  • a 24-hour urine collection analysis

And I have had the following treatments:

Once again, I am tired to the bone.  It has been a long year, filled with poor health and weekly medical appointments, new medications with complicated regimens, numerous corrections of Tricare billing errors, and several rejected requests for therapeutic medical devices.  This is also the year I discovered that I have multiple allergies (I didn’t know I had any),  and these allergies require that I make significant diet and lifestyle changes.

On the bright side, I *do* finally feel that I am getting better quality of care.  I am slowly building a team of competent medical specialists to diagnose and treat my health issues.  I am learning how to get rid of the incompetent ones.  Spousal Unit and I are learning how to navigate the treacherous Tricare healthcare system more effectively.  I am getting diagnoses that explain my symptoms, and I am getting treatment to reduce my symptoms and hopefully address the underlying causes.

I tell myself to frame the situation positively.  Instead of telling myself I am broken, I tell myself I am healing.  Both are true.  But I choose to focus on a positive future, rather than a negative one.  I believe this will help me get better.

2016 has been a crappy year, full of debilitating health problems.

But I am healing.

Medical Procedures: What It’s Like to Have a Steroid Injection

Approximately six weeks after hand and wrist surgery, I developed “trigger finger” in the pinky finger of my surgery hand.  After the splints were removed and I started using my fingers again, I noticed my pinky finger “clunked” when I curled it, and it “clunked” upon full extension too.

Trigger finger (medical name: stenosing tenosynovitis) happens when inflammation occurs in the sheath surrounding a finger’s tendon, narrowing the space through which the tendon moves and impinging its movement.

After two weeks of occupational therapy and treatment for the swelling in my hand and wrist (eight weeks post-surgery), the clunking in my finger had gotten worse.  So the therapist informed the surgeon, and he decided to treat the trigger finger with a steroid injection.  This was not fun.

My orthopedic surgeon cleaned the injection site thoroughly with an alcohol wipe and then he sprayed an icy numbing spray on the area.  I felt the needle go in.  But the discomfort started as he began to inject the steroid solution.  It felt very similar to an arthrogram injection – there is increasing discomfort as the space begins to fill.  In the case of an arthrogram contrasting solution injection, your joint fills with fluid.  In the case of this steroid injection, my tendon sheath filled with fluid.

As the discomfort increased, I once again found breathing exercises very helpful for controlling the discomfort (for more on breathing exercises, see this previous post).  Additionally, my surgeon was applying pressure to the tip of my finger which helped focus my attention away from the discomfort at the injection site near the base of my finger.

About halfway through the process of filling the tendon sheath with the steroid solution there was a noticeable “clunk”.  Both the surgeon and I could feel it.  He asked me if I felt it, then grinned and said “That’s a good sign.  We’re getting the solution where we want it.”

Toward the end of the injection there was a second “clunk”.  My surgeon was very pleased.  As he continued the injection, he asked if it felt to me like the area was getting too full.  When I said no, he finished emptying the syringe, removed the needle, and placed a band-aid over the injection site.

My surgeon warned me that it would probably hurt the next day – possibly a great deal.  He mentioned that I might find myself saying very uncomplimentary things about him.

[As it turned out, I had no pain or discomfort the next day.  I don’t know if it made a difference that I was wearing a compression glove, a compression stocking, and a brace on that hand.]

My occupational therapist cautioned me not to do my therapeutic exercises for the remainder of the day, as that could cause the steroid solution to work its way out of the target area.  She also told me not to apply heat to the area for the remainder of the day, but said that I could ice it as desired.

For several days following the injection, I am supposed to modify my therapeutic exercises to exclude my pinky finger as much as possible.  My surgeon said it can take up to five days to achieve the full effect.  The steroid injection should reduce the inflammation and allow the affected tendon to move freely again.

I did notice the temporary side effect of facial flushing, but it didn’t last very long (maybe 20-30 minutes).  My finger was also swollen and numb after the injection.  I’m not sure how long that lasted, because I went home immediately and applied a cold pack to the area.  By the time I removed the cold pack, the numbness was gone and most of the swelling was too.

In theory, the steroid injection will relieve the inflammation and cure the trigger finger.  Meanwhile, the rest of the post-surgery swelling of the hand and wrist should gradually abate and hopefully the trigger finger condition will not return.  In other words, hopefully this one treatment will fix it and I shouldn’t need another steroid injection.

Bottom Line: It was pretty uncomfortable during the injection, but I didn’t experience any after-effects.  If this cures my trigger finger in one treatment, it will have been totally worth the temporary discomfort.  As far as medical procedures go, for me, this one was no big deal.

Medical Procedures: What It’s Like to Undergo a Sleep Study (Polysomnogram)

“So, why are you here?,” the technician asked me.  “My spouse says my snoring is pretty bad,” I responded sheepishly.  The technician laughed. “That’s the number one reason we see people here.  If it weren’t for spouses, a lot of people wouldn’t realize they have a problem.”

Well, I didn’t think I *had* a problem, but Spousal Unit did not agree.  A discussion with my PCM led to a consultation with a sleep doctor, who decided a sleep study was in order.

I arrived for my sleep study one evening after dinner.  I was told to bring my pajamas, toiletries, any medications I normally took, anything that was part of my normal night routine, and clothes for the next day.  I was also told that I could bring my own pillow if I wanted.

In preparation for the sleep study, I was told not to have any caffeine or alcohol after noon on the day of the study, since caffeine and alcohol can disrupt sleep patterns.

[For more information on preparing for a sleep study, see this article from the UCLA Sleep Disorders Center.]

A technician showed me to my room, which was something between a hospital room and a hotel room.  It had a linoleum floor, industrial fluorescent overhead lighting, a double bed, nightstand with lamp, dresser, television, and private bathroom.

The technician explained the sleep study procedures and asked if I had any questions.  Then he told me to change into my pajamas and do my evening routine to get ready for bed.  He told me to open my bedroom door when I was done, and he’d be back to get me hooked up to the monitoring equipment.

When he returned, the technician placed electrodes on my face (including the corners of my eyes) and scalp.  The electrodes have sticky backs, and attach directly to your skin/scalp.  The electrodes are connected by a tangle of individual wires to a relay that sends electrical signals from your brain and muscles to a computer.  These electrodes monitor various aspects of your sleep.

Next, the technician fastened bands around my chest and abdomen to measure breathing.  Then he attached a clip to my finger to measure the level of oxygen in my blood and monitor my heart rate.  (You’ve probably seen this clip before at your doctor’s office or in a hospital room – I call it the E.T. finger because it glows at the tip.)

None of the monitoring equipment was painful or particularly uncomfortable – it was just incredibly awkward.

Two sleep study warriors wired up for their studies:

After the technician got me all wired up, he gave me a call button in case I needed to summon him and told me to get comfortable, watch a little TV or read, and try to go to sleep around my normal time.

If I needed to go to the bathroom, I was supposed to summon him, and he would come and unplug some wires so I could get to the bathroom.  Everything would remain attached to me (electrodes etc.), so it would be a fairly simple process to disconnect and reconnect a few connections.

After he left, I watched TV for a while, then turned off the TV and the lamp and tried to sleep.

I know veterans are supposed to be able to sleep anywhere, but I have never been able to sleep lying flat on my back.  I can sleep sitting straight up, I can sleep on top of a cargo pallet in the back of a C-130, and I even fell asleep standing up once, but I cannot sleep lying on my back.  This was a bit of a problem, since I had all of the monitoring equipment hooked up to me, which made it difficult to sleep on my side, and impossible to sleep on my stomach.

To make matters worse, I was hyper-alert because I was sleeping in a new place, with lots of unusual noises, and I knew I was being monitored via a video camera.  Try sleeping while someone is watching you.

At one point I heard some commotion in the hallway – I found out later that one of the other patients had been sleepwalking.  How they managed that with all the equipment hooked up to them, I do not know.

Several times during the night the technician came over the intercom and encouraged me to try to sleep.  I must have fallen asleep eventually, because he woke me up in the morning and said it was time to go.  I asked if I had had a long enough sleep-cycle for him to get sufficient data, and he said just barely.

The technician disconnected and detached all of the monitoring equipment and left the room.  I took a shower, got dressed, packed up my gear, and was shown out of the sleep center.

Once all of my data was processed, I had a follow-up appointment with the sleep doctor.  The sleep doctor informed me that I have sleep apnea, and that I needed to remedy that by sleeping with a continuous positive airway pressure (CPAP) machine.

This diagnosis meant that I had to return for a second night at the sleep center, to determine what CPAP machine air pressure settings would alleviate my sleep apnea.  Oh joy.

The second visit was pretty much like the first.  Because I had had trouble sleeping the first time, they gave me a room down a dead-end hallway, which had less traffic and was darker and quieter than my first room on the main hallway.

This time, in addition to all of the monitoring equipment, I also had to wear a CPAP machine mask.  The mask allows the machine to provide pressurized air through your passageways in order to keep your airway open and provide enough oxygen to your lungs while you sleep.

I had tried on several types and sizes of masks during my follow-up appointment with the sleep doctor, and we had settled on a specific type and size.  The technician had this type and size mask ready for me to try the second night, as well as some others if the first mask didn’t work well for me during the second sleep study.

The technician adjusted the mask straps and fitted it for me, then showed me how the CPAP worked.  Like many of the newer CPAP machines, the one I used that night had a “ramp” feature that lets the air come through the mask at a lower pressure, and then gradually increases the air pressure to your prescribed setting.

This gradual increase usually takes about 15 minutes, and is supposed to give you time to fall asleep as you gradually adjust to the pressure.  If you have not fallen asleep by the time the machine reaches full pressure, and it is uncomfortable for you, you can press the ramp button, which will drop the pressure and start the gradual increase again.

The purpose of this second night was to determine at what air pressure my sleep apnea symptoms would be alleviated.  This meant that the technician would try various settings, and then I was supposed to fall asleep and the technician would see if the setting worked.

I got even less sleep the second night than I had the first night.  In addition to the awkwardness of all of the monitoring equipment, I now also had a mask strapped to my face with straps that went across my cheeks and over the top of my head.  The mask forced air through my nostrils, and the air flowing through the hose made noise.  It was nearly impossible for me to sleep with all of this stimuli.

A few times I dozed off and then the machine reached full pressure, which startled me awake.  By the end of the night, the technician was frustrated (although he wasn’t rude about it).  He said he barely had enough data to be able to calibrate the machine, but called it good enough.  None of us wanted to try that again on a third night.

As before, the technician removed all the equipment, and I got dressed and left.  I was glad I didn’t have to work the day after the second sleep study, because I was wiped out.

Results: As a result of my sleep study, I was diagnosed with sleep apnea and prescribed a CPAP machine for home use.  The mask was fitted for my head, the machine’s air pressure settings were adjusted for my required level, and I was told to sleep with this machine every night for the rest of my life.

Do you sleep with a CPAP machine?  Have you found a way to make peace with it?  Any hacks to make it less awkward?  Please share with us below.